Potential benefits of your child taking part in clinical trials
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They may receive a new treatment for their tumour type that is only available as part of a trial
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The new treatment may be more effective than standard treatment
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The study may potentially help other children in the future as well as your child
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Treatment is closely monitored as part of a trial
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The study may be a chance to meet others in a similar situation.
Potential risks or disadvantages of your child taking part in a clinical trial
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Clinical research can at times involve risks
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There can be unexpected side effects, especially in early (Phase I trials). However your child will be closely monitored
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The treatments can involve more hospital visits and investigations than your child would otherwise have had.
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This can take away from quality time that you have with your child. Sometimes, this can be hard to weigh up when the benefits in terms of outcomes are uncertain.
Ultimately, whether your child should participate in a clinical trial is a hard decision, but for some children, it is an extrememely good option.
It is important to discuss all of your concerns and questions with your child’s consultant to ensure you are able to make a fully informed choice. For more information on participating in clinical trials, see Taking part in clinical trials from the Children's Cancer and Leukaemia group. They have produced an excellent booklet with further information.
Further information
- Investigations that my child with cancer may undergo
- Vascular access for children with cancer
- Feeding for children with cancer
- Treatments that my child with cancer may undergo
- Other useful charity resources, support groups and website links
My child has been diagnosed with a rhabdoid tumour - see our rhabdoid tumour information resources
Content reviewed July 2021