The team at the Grace Kelly Childhood Cancer are passionate about the work we do in the fight against the number childhood cancer. Since the Trust was founded in 2016, we have grown into a dedicated, dynamic and forward thinking charity which is responsive to the needs of the families it supports.
Because no family should face childhood cancer alone.
Two million families reached
The distribution of over 950,000 awareness cards and over a million digital copies of our cards for parents and health professionals is working to the signs and symptoms of childhood cancer.
The Grace Kelly Childhood Cancer Trust is funding the insertion of this card into the PCHR (Infant Red Book given to the parents of newborn babies) in many regions.
Funding vital research
Research into childhood solid tumours is very underfunded.
The GKCCT has funded £330.000 of research to date. This has included research into rhabdoid and other solid tumours to search for better and kinder treatments for children with these aggressive tumours.
In addition, in partnership with other major charities, we are funding a joint research programme, Child Cancer Smart to study in depth the signs and symptoms of childhood cancer to enable us to work together towards the earlier diagnosis of children with cancer.
Financial support following the death of a child from a rhabdoid tumour
In the last year, 8 children from the UK have passed away within the rhabdoid families GKCCT support group. GKCCT provide support grants to families affected to help towards funeral and other costs at this devastating time.
Providing educational resources
The Grace Kelly Childhood Cancer Trust has produced educational resources for parents and professionals to raise awareness of the signs and symptoms of childhood cancer.
We have released a number of publications for families affected by childhood cancer. These include booklets written specifically for children and booklets written for parents. We have also worked with another major charity to produce resources and guidance for General Practitioners.
Support for families
Support is crucial for families affected by childhood cancer. The GKCCT runs an online support group for families from the UK and internationally for those affected by rhabdoid and other rare aggressive solid tissue tumours. This provides a much needed, "Beacon of light in a terrible storm."
We also now have a support team at the Trust meaning we can give practical and emotional support to local families during treatment and beyond. For the families that sadly lose a child, we are still there for them and offer bereavement support to both the parents and siblings.
Support for local families
The GKCCT provides support for families based in Worcestershire, Herefordshire, Gloucestershire and now Devon. We give financial support to families when a child is diagnosed with cancer, if they relapse or sadly pass away.
We also gave additional grants to local famlies during the covid-19 pandemic to help with extra costs and delivered packs of supplies to families in Worcester. To date, we have given families £45,000 of financial support.
New Diagnosis Support Packs
The GKCCT provides new diagnosis support packs which are ready and waiting in hospital for when a child is diagnosed with cancer in Worcestershire, Herefordshire and Gloucestershire. The packs contain a multitude of useful items such as toiletries, a comfort blanket, a notebook and pen, headphones for those long nights in hospital, a torch, sticker reward charts, a comfort cuddly for the child and several other items that will be valuable to have during an unplanned hospital stay.
The packs also contain our information booklets and a referral form that will enable them to receive a non-means tested financial support grant to help with the extra costs they will be facing.